One of the things I was most afraid of when I was first diagnosed with Mastocytosis was how my life would change. I worried if I would be able to live on my own, if my life expectancy and quality of life would decrease and whether I would be able to work and support myself.  

This blog post is about an understanding employer who made a significant impact in my life.  


This week's guest post is courtesy of Hell's Bells and Mast CellsThe article discusses how walking (in the safest place possible) is helping to restore muscles that were weakened by long-term use of prednisone. 

It is an informative, humourous perspective about getting back into an exercise routine.  


Guest Post from Wendy Busse, Registered Dietitian.  As a registered dietitian, my specialty is helping clients on a limited diet expand their intake and enjoy eating again. 

In this article, we will discuss Tips to Prevent a Downward Spiral and Tips if Your Diet is Already Restricted.


According to my diagnostic tests, I should be healthy. So why do I take 12 pills a day just to eat and carry around two Epi-pens?

Welcome to the limbo land of those of us who have mast cell disease but are technically undiagnosed.  


It takes time to learn how to live with Mastocytosis, long-term, and in this article, I discuss how my husband and I deal with acute mast cell attacks in our home.

Communication, we have found, is essential.  


The video recording is now available for the Minimizing Food Fears + Frustrations webinar held on March 6, 2019. 

Watch as Wendy Busse describes eight helpful tips for managing food sensitivity.  Also included in this article is a brochure outlining these eight tips and the questions and answers asked during the webinar.  We hope you enjoy!


This week's blog comes from Michelle Dellene over at mastcelldisease.com.  Michelle writes a very relatable blog about her journey with mast cell activation. 

Here is the most recent post from her "A Day in the Life" series, which shares an inspirational message for all of us.  Enjoy!


My name is Kathleen and I was diagnosed with Systemic Mastocytosis nearly 18 years ago.  I would like to share with you the details of my diagnosis, my treatment plan and the ongoing management of this rare disease.  Today my Mastocytosis is stable, but that hasn't always been the case.  


Guest Post from Wendy Busse, Registered Dietitian.  Pinpointing the cause of mysterious symptoms is challenging. In some cases, the search for illusive food sensitivity triggers causes more suffering than the original symptoms.


Register now!  Food and balancing diet can often be one of the greatest challenges when living with Mast Cell disease. Join Wendy Busse -Registered Dietitian- as she helps clients struggling with restricted diets find peace with food and explore fears and frustrations that are common with food sensitivity.


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