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The Fundraising Committee will commit to raising funds through donations, grants and fundraisers. These funds will be used to advance our goals of awareness, education and support of patients, caregivers and physicians.
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The Communications Committee will commit to sharing valuable information with the mast cell community through the use of our website and blog. The committee will focus on maintaining our industry leading website, translating the website to French, and creating an informative blog to help spread awareness, education and support of mast cell disease.
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The Medical Intelligence Committee (MIC) will be the gatekeeper to our official Medical Advisory Committee. The Medical Intelligence Committee will seek out research on all forms of mast cell disease, distill the information into layman’s terms, and present to our Medical Advisory Committee. Once approved, the information will be communicated via the appropriate communication mechanism. The MIC will also continue to build and refine our Canadian list of physicians who have knowledge and experience with mast cell disease and gather information from patients to better understand mast cell disease and its effect on patients.
- The Awareness and Education Committee will look for opportunities to increase awareness of mast cell disease among specific audiences including patients (pediatric, adult, geriatric), physicians (allergists, immunologists, dermatologists, general practitioners, etc.) and caregivers. They will provide education, guidelines and other necessary supports to ensure audience needs are met.
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The Patient Support Committee will focus on patient support through the use of email and other technologies and through the establishment of support groups (either geographical or virtual).