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Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness among the general public and decision-makers about rare diseases and their impact on patients' lives.

Mastocytosis is described as a rare disease, but the exact incidence and prevalence are not known. According to the Genetic and Rare Disease Information Centre, an estimated prevalence is approximately 1 case per 10,000 people. Mast Cell Activation Syndrome (MCAS) is thought to be more common but difficult to diagnose, thus often goes under-diagnosed.  

Please help us raise awareness of Mast Cell Disease. Raising awareness improves knowledge and encourages researchers and decision makers to address the needs of those living with rare diseases.  Hopefully, this will lead to better diagnostic testing, improved treatment options and eventually, a cure.  

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Visit www.rarediseaseday.org to find fun, clever ways that you can participate in Rare Disease Day!








Watch: Emotional and Psychological Coping Process of People Living with a Chronic or Rare Disease

Recordings are now available in English and French!

Join Annie Perreault, M.A. Psy, as she presents this serious and playful presentation that offers coping strategies for people living with a rare or chronic condition.

Watch the English webinar recording

Watch the French webinar recording




Rare Disease Profile Frame 

Change Your Facebook Profile Image

 Add a frame to your Facebook Profile Pic to support Rare Disease Day.

  1. Edit your picture and choose Frames
  2. Search for "Rare Disease"
  3. Save





Unique Charm Copie


Purchase a Mast Cell Awareness Charm

Help raise awareness by purchasing and wearing your Mast Cell Awareness charm!  


These beautiful charms are a great conversation starter and provide a unique opportunity to raise awareness about mast cell disease.  Purchase a charm, keychain or bracelet for anyone who might be impacted by mast cell disease.  They're sure to wear it proudly!