Preparing for your doctor’s appointment can be as important as getting the appointment itself. Here are a few tips to prepare yourself for that visit:
- Advocate: Become your own advocate for your health and well-being.
- Write it Down: Monitor your health and record your symptoms (every day if necessary). You may forget certain things when you present at your Doctor's office or the Emergency Room. Having a record of your symptoms may help outline what you have been dealing with.
- Triggers: Try to establish what your triggers are. When your health changes, no matter what degree, record:
- where you were
- what you were doing at the time
- what did you eat/drink
- what were you exposed to (i.e. fragrances, chemicals)
- were you under any stress
- was it too hot or cold
- Symptoms: Monitor your symptoms including type and duraction.
- were you short of breath
- did your GI tract react
- were you itchy
- did your skin react did you feel depressed
- did your heart rate increase or decrease
- Prepare Questions in Advance: Be prepared with a list of questions in advance of your doctor's visit.
- Have Patience: Remember that any illness takes time to diagnosis. This is a rare disease and caregivers may not be familiar with this disease.
- If you feel ill and your body is telling to seek care, listen and get care.
- If you need to rest, REST.
- If you need to talk, talk to a family member or friend.
- If you think you are not being heard, advocate to be heard.
If your physician agrees that Mast Cell disease may be a possibility, feel free to reach out to MSC to find a specialist in your area that is knowledgeable about diagnosis and treatment.