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Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness among the general public and decision-makers about rare diseases and their impact on patients' lives.

Mastocytosis is described as a rare disease, but the exact incidence and prevalence are not known.  According to the Genetic and Rare Disease Information Centre, an estimated prevalence is approximately 1 case per 10,000 people.  Mast Cell Activation Syndrome (MCAS) is thought to be more common but difficult to diagnose, thus often goes under-diagnosed.  

Please help us raise awareness of Mast Cell Disease. Raising awareness improves knowledge and encourages researchers and decision makers to address the needs of those living with rare diseases.  Hopefully, this will lead to better diagnostic testing, improved treatment options and eventually, a cure.  

 

You can help raise awareness! 

 

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Visit www.rarediseaseday.org to find fun, clever ways that you can participate in Rare Disease Day 2019! 

As you'll find out, there are many ways to participate. Let's join our efforts to give hope to rare disease patients all over the world!

 

 


 

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Share your story!  We can drastically increase awareness of mast cell disease by telling others our story.  By sharing our story, we can:

  • help other patients feel they are not alone on this journey.
  • help our friends and family know what it's like to live with a rare, often debilitating disease.
  • help government officials and decision makers understand how they can improve health care for those with rare disease.  

Please share your story with us at blog@mastocytosis.ca.  With your permission, we would love to feature your story on our blog, or here on our website.  

 

 


 

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Subscribe to our MSC Blog!  Recently, we began publishing blog posts with helpful information on research from industry experts, understanding mast cells, nutrition and food sensitivity, patient stories and living with mast cell disease.  

Of course we want you to subscribe to our blog, but we strongly encourage family and friends to sign up as well.  This information is very helpful in raising awareness of mast cell disease and proving others with a glimpse into what it's like living with a rare disease.  

Please subscribe here!

 

 


 

Donate

 

Consider Donating to MSC!  We provide education, guidance and support to those impacted by mast cell disease.  

As a registered Canadian charity, we rely on generous, compassionate people like you to support and further our work.  Your donation truly makes a difference and allows us to fund activities, like blogs and webinars, to drive awareness and support of mast cell disease.  

Please donate today!