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The following links will direct you to those organizations and resources which complement our efforts to help you protect your health and learn additional medical information required to manage complications due to our rare disorders.

RESOURCES

  • MedicAlert Canada main site and Membership financial assistance program with MedicAlert Canada
  • Epipen Canada - Learn how to use an EpiPen
  • EpiPen holder (Mountain Equipment Co-op Canada)
  • First Aid Storage Bag for easy storing of medications during travel, daily trips (Mountain Equipment Co-op Canada)
  • Dealing with Food Allergies (book by Canadian Registered Dietician & Ph.D. in medical microbiology and immunology Dr. Joneja)
  • Dealing with Food Allergies in Babies and Children (book by Canadian Registered Dietician & Ph.D. in medical microbiology and immunology Dr. Joneja)
  • Vickerstaff Health Services FAQ & Fact Sheets about Food Allergy, Nutrition, and Health
  • Canadian Food Inspection Agency: Food allergens information, Laws, Food recall & Allergy Alerts (Government of Canada)
  • When the Body says No: The cost of hidden stress (book by Canadian Dr. Gabor Mate)
  • Well.ca - Online national home healthcare goods delivered to your door nationwide in Canada
  • Merck Drug Manual - Search & Learn about medications, adverse reactions, drug interactions, etc.
  • Lab Tests Online - to help you understand test requirements and results (Canada and International resource)
  • PLAN - Planned Lifetime Advocacy Network: For families with a disabled relative or child in Canada
  • Histamine-Reducing Diet - Wendy Busse, MSc, RD is a registered dietitian specializing in the histamine - reducing diet.


  • ORGANIZATIONS

  • Canadian Organization for Rare Disorders
  • The Quebec Coalition of Orphan Diseases / Le Regroupement Quebecois des Maladies Orphelines (RQMO)
  • Orphanet, the European portal for rare diseases and orphan drugs
  • Canadian Anaphylaxis Initiative
  • Niagara Anaphylaxis Support - NASK is the most innovative & effective Anaphylaxis advocate in Canada (eg. Sabrina's Law)
  • Osteoporosis Canada - Protect your bone health, how to live with weakened or brittle bones
  • Canadian Uveitis Society - Protect your eyes and vision. Learn about Iritis, a complication of mast cell disorders
  • Canadian Ophthalmological Society - Protect your eyes and vision. Mast cell disorders contribute to eye/vision problems
  • The Arthritis Society - Learn about the specific diseases of arthritis many of us are at risk of developing or have already developed (eg. Sjogren's, Raynaud's, Osteoarthritis, Ehlers-Danlos, etc.)
  • Canadian Cancer Society - Learn about types of cancer (research has proven certain types associated with mastocytosis)
  • Canadian Diabetes Association - Learn about diabetes. (For mastocytosis patients living with or at risk of diabetes)


  • SUPPORTERS

    We are grateful to those who help Mastocytosis Society Canada, past and present

  • Luxton School (Winnipeg, Manitoba, Canada)
  • Royal Bank of Canada
  • Women's College Hospital (Toronto, Ontario)
  • St. Michael's Hospital (Toronto, Ontario)
  • Deloitte & Touche (Toronto, Ontario)
  • And all of the individuals and families who donate their time and resources.


  • We need your help. Please Volunteer!
    Contact us: info@mastocytosis.ca.

    Please DONATE and/or JOIN today!

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