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Mastocytosis Society Canada (MSC) maintains Affiliate Group Membership and listing with the following groups:-

  • Canadian Organization for Rare Disorders (CORD)
  • The Quebec Coalition of Orphan Diseases / Le Regroupement Quebecois des Maladies Orphelines (RQMO)
  • Orphanet, the European portal for rare diseases and orphan drugs

  • Mastocytosis Society Canada has also established a working partnership with MedicAlert Canada for all Canadian patients diagnosed with Mastocytosis, Mast Cell Activation Syndrome, and Idiopathic Anaphylaxis. We encourage all our members in Canada to register with MedicAlert Canada. They will speak for you when you are unable to speak for yourself in a medical emergency.

    Other resources we suggest for the health, safety and benefit of our members in Canada include but are not limited to the following:-
  • Niagara Anaphylaxis Support & Knowledge
  • Canadian Anaphylaxis Initiative
  • PLAN - Planned Lifetime Advocacy Network: For families with a disabled relative or child in Canada

  • Please let us know your comments, additional resource suggestions, or if you have any questions.
    E-mail us at support@mastocytosis.ca at your convenience.


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